hEDS ‘We live in constant fear’: the reality of life with Ehlers-Danlos syndromes – The Guardian November 4, 2019 CharisseVanHorn hEDS, Hypermobile Ehlers Danlos Syndrome ‘We live in constant fear’: the reality of life with Ehlers-Danlos syndromes The Guardian Author CharisseVanHorn Charisse Van Horn is an artist, poet, and freelance writer. View all posts